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Language is powerful

It can affect the way we see other people and the way people view themselves.

While HIV is a long-term, manageable medical condition like many others, it attracts stigma and discrimination like no other.

Words and phrases used about HIV and people living with HIV can carry hugely negative connotations. Describing people living with HIV as 'suffering', for example, reinforces outdated stereotypes and casts the person as a helpless victim - which is stigmatising in itself.

Language has the power to include or exclude

Some of the language used about HIV and about people living with HIV implies blame and sets people living with HIV apart and different - making it about 'them' and not 'us'.

Language can reinforce stigmatising attitudes, or it can help bring about a world in which people living with HIV are no longer the subject of negative attitudes, stereotypes and discrimination.

Try to avoid Better to use

HIV positive person

Person living with HIV

Put the person before the diagnosis

Person infected with HIV

Person living with HIV

Avoid use of the words 'infected' or 'infection'

HIV Virus

HIV

Human Immunodeficiency Virus

Became infected with HIV

Contracted or acquired HIV

Avoid use of the word infected

Catch / caught HIV

Acquire / acquired HIV

HIV / AIDS

Use either HIV or AIDS

HIV and AIDS are not the same thing. HIV is a virus, AIDS is a clinical syndrome

AIDS

Essentially a historical term standing for 'Acquired Immunodeficiency Syndrome' - meaning a collection of illnesses which might occur as a result of a severely weakened immune system. As more and more people have access to effective HIV medication which k

AIDS test

HIV test

AIDS is a clinical syndrome and therefore there is no 'test' for it

Victim / sufferer

Person living with HIV

Words like 'victim' or 'sufferer' can have extremely negative connotations

Disclose / disclosure

Tell, talk about, share

The word 'disclose' has negative and secretive connotations which can magnify feelings of shame and self-stigma

Clean - as in 'are you clean?'

Do you know your HIV status?

Using the word 'clean' can be highly offensive and implies that people living with HIV are 'dirty'

Comply / compliant with HIV medication

Adhere / adherence to HIV medication

'Comply' implies following instructions. 'Adhere' recognises active engagement in care

Serodiscordant couple

Mixed status couple

A relationship where one person is living with HIV and the other is not

Mother to baby transmission of HIV

'Vertical' or 'perinatal' transmission of HIV

'Mother to baby' implies blame

Eradicating HIV by 2030

Ending new transmissions of HIV

There will be many people still living with HIV when there are no new transmissions

Number of HIV infections

Number of HIV acquisitions or number of people diagnosed with HIV

Zero new infections

Zero new transmissions of HIV

Avoid using the word 'infection'

Get in touch

Don't worry or struggle with any aspect of your diagnosis or experience. We're here. You always have someone to talk to.

Not sure where to start?

Give us a call, send us an email, or complete this form.

0161 274 4499

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