News: 11/2024 | Page 3 | George House Trust

The 2023 theme for Women’s History Month is "Celebrating Women Who Tell Our Stories."

 

HIV activist Ana Oliveira is sharing her story to inspire others and help to break down HIV stigma and discrimination. Read part 1 here

 

Here is part 2 where Ana shares her status with her loved ones and starts to move forward.....

 

I shared my HIV status to my children at different times and they were very supportive. They were the ones who encouraged me to become an advocate and my Instagram page was set up with their help.

 

Then I progressively shared my status with my extended family and close friends. Telling my mum was nerve wracking but it turned out to be a very positive response.

 

To my surprise, she knew all about the difference between the virus and the late stage of HIV, she just wasn’t too sure about the treatment itself. I explained that I only take one pill a day. She lifted up her shirt and said “better than my treatment for diabetes… look at my belly ruined by insulin injections”.

 

Then she hugged me tight and said: “Don’t cry my daughter, I know you will not fall ill, as you are on treatment, but if you fall ill I will feed you”. Then she said how proud she is to have me as her daughter and that she would never turn her back on me. 

 

I knew this day was the beginning of finding myself again.

 

My faith and the unconditional love of my children, family and friends are my rock.

 

Attending therapy, getting involved with George House Trust and developing strong links with the HIV community has created miracles.

 

With time, I started to realise that the labels imposed by others don’t define me. And by looking at stigma in this way I kind of understood that the first change needed to come from within. Only then I could find strength to fight the stigma of others. 

 

I learned how to deal with my emotions and day by day I’m detaching myself from the pain that once drove me to the edge. I would say that I’m still going through the healing journey in terms of how I become HIV positive. I call it the hidden pain of HIV.

 

But I can firmly say that accepting my diagnosis and being public about it has definitely changed the narrative.  

 

I share my story to inspire others and help to break down stigma and discrimination. 

 

Ana Oliveira 14th March 2023  

Tuesday, 14 March, 2023

The 2023 theme for Women’s History Month is "Celebrating Women Who Tell Our Stories."

 

HIV activist Ana Oliveira is sharing her story to inspire others and help to break down HIV stigma and discrimination.

 

Here is part 1 where Ana receives her diagnosis and experiences HIV stigma for the first time. 

 

*TW* This article contains references to depression, PTSD and suicidal thoughts. 

 

I will never forget the 3rd of January 2019. It was a miserable dark and rainy day. My car broke down, I had an appointment with my son to be seen at the eye clinic. Around 9:30am, I got a call from a private number.

 

“Hi, can I speak with Ana Oliveira?”

 

“Ana speaking. How can I help you?”

 

“It’s Julie from the Health Clinic, we got your blood results back. Is there any chance you could pop in today?”

 

“Is everything okay? Can you tell me over the phone?“

 

“I’m afraid not, love. Can you bring someone with you? “

 

As soon I heard this I knew it was the worst. I knew that what I feared the most had eventually become a reality. No one is going to ask me to bring someone with me to tell me that I have a simple STD.

 

At the clinic Julie said: “I’m sorry love, I don’t have good news. Your HIV test came back positive. “

 

It felt like it was a death sentence. It was devastating, not only because of the illness itself, but also how I became HIV positive. My first instinctive thought was my children. If I die, what about them? They can’t live without me. Why me? I was crying…Remember they advised me to take someone with me. I took my little son and he turned to me and asked: “Mummy why are you crying? “ I said “Mummy is going to be ok, don’t worry!”

 

Julie was lovely, very compassionate. She said: “Ana, this is no longer a death sentence, you can go and live the same long life as someone who is HIV negative as long as you agree with treatment”. I replied straight away, ”Of course I want to start treatment, no questions here.” I knew that HIV is no longer a death sentence. I believe in science. But the way our mind works when it’s faced with fear…it’s hard to explain.

 

On the same day, I saw a second nurse to take bloods for the resistance test yet she made a very stigmatising comment: 

 

“It’s unfortunate, from all the STDs you could have contracted, you chose HIV.”

 

An awkward silence filled the room. I couldn’t even answer back. Then realisation sunk in…HIV was not going to kill me but the stigma attached to it could. 

 

The stigma that I’ve faced has shaped my journey, living with HIV and my perceptions about it. I came to lose myself, the one that I was so proud of. The one who had never looked differently to a person living with HIV was now living with this internalised stigma and I hated myself. 

 

In the first year following my diagnosis I was rushing and living in survival mode, but still I managed to buy my house so if something was to happen to me, my children would have a house to live and they could stay together. I knew they would be supported by my family and friends. 

 

With HIV, I came to meet severe depression and I was eventually diagnosed with PTSD and I almost committed suicide. In reality, I didn’t want to die I just wanted to find a way to remove the pain. 

 

My friends never realised that I was depressed, I was off work for long periods of time but pretending I was taking a career break. But with my children, it was a different story, they knew that I was mentally unwell although they didn’t know the real reason. 

 

I started counselling through George House Trust but soon gave up because I thought I would be okay. George House Trust were amazing, always checking on me, reassuring me that they were there for me if I ever needed them.

 

After another episode of depression, I eventually came to the realisation that I needed help and I started therapy through occupational health at work. 

 

Read part 2 of Ana's story here

 

Ana Oliveira

Monday, 13 March, 2023

It's International Women's Day and HIV activist Ana Oliveira has a message for women who are living with HIV.

 

"Today, I celebrate every woman, and especially every women who is living with HIV.

 

I celebrate those who have gone before us.

 

I celebrate those who fought for our dignity and rights.

 

I celebrate those who are here visible or not.

 

Know that I’m proud of you, no matter what phase of your journey you’re in.

 

Know that you are an amazing woman.

 

Know that you are not alone and remember…… You are not what happened to you.

 

You are who you choose to become."

 

Ana Oliveira, March 8th 2023

Wednesday, 8 March, 2023

Manchester Pride Intern 2023

 

We're recruiting for our Manchester Pride 2023 Intern with the University of Manchester! 

 

We asked Eve, our Manchester Pride 2022 intern, about her experience...

 

"My Student Experience Internship at George House Trust has undoubtedly been the highlight of my time at the University of Manchester."

 

I gained experience and solid examples of work in an industry I’d never been involved in before, and probably would not have had a chance to learn about if not for this internship.

 

If you think you might be interested in marketing and events planning, I cannot recommend this job enough. You need to think on your feet and come up with fun and creative ideas. Whatever you put in, George House Trust will give you back tenfold, and I personally found this an amazing way to learn.

 

This is a real stand-out example of work experience and the breadth of the job gives you so many great stories to use in later interviews, particularly to show employers your values and character – this is not just a rainbow parade, it is a platform for people living with HIV to feel valued and celebrated in the community.

 

If you’re not familiar with George House Trust (I wasn’t!) ask around, and you will see how respected their name is and how valuable the support they offer is to people who need it.

 

For me, highlights of the internship were creating a social media campaign for George House Trust’s presence at Pride, working with external graphic designers to do so; content creation to raise awareness of HIV; and, of course, the Pride Parade itself.

 

I was fortunate enough to work with amazing drag artists and DJs from Manchester to put on a fantastic show, and it was evident how much this meant to George House Trust’s service users."

 

"If you want an internship that’s more than filling out spreadsheets, will give you a taste of marketing and event planning, and, most importantly, is hugely fulfilling and really matters, this is the job for you."

 

Eve Morrison, February 15th 2023

Wednesday, 15 February, 2023

Decline In Brain Function Is Linked To Other Medical Conditions Rather Than Ageing With HIV

 

A recent NAM article reported that the decrease in brain function seen in a 12-year study of people with HIV was worse than would be expected for typical ageing. This decrease was linked to diabetes, high blood pressure, chronic lung disease, depression, nerve pain and cannabis use. HIV itself did not appear to worsen brain function, nor was there a significant difference in brain function decline between different age groups.

 

Overall, 1597 people living with HIV were interviewed for this prospective study at six different US medical centres, between 2003-2007. Those with active opportunistic infections, major substance use problems or severe mental health issues were excluded, as this would have prevented them from undergoing a full day assessment. An average of 12.4 years later, 402 people were interviewed again to compare their brain function, medical conditions and medications after this time. Seven different types of tasks controlled by the brain such as memory and language, were tested in a 2-3 hour long interview to measure brain function. Bloods tests, medical examination, urine samples and spinal fluid samples were also completed at both appointments. Frailty assessments were only conducted at the second visit.

 

You can read the full article here.

Monday, 6 February, 2023

Not Counted: Clinical Trials Of New HIV Treatments Are Failing Women

 

A recent article reported that The low representation of women in clinical trials has led to some efficacy and safety differences between men and women being missed, reports Dr Shuang Zhou of the United States Food and Drug Administration (FDA). African-American women were particularly underrepresented in clinical trials of new antiretrovirals.

 

Women make up the majority of people with HIV globally, but there is a chronic underrepresentation of cisgender women in antiretroviral clinical trials. This lack of representation results in sex-based differences being unknown. Some side effects, such as weight gain and rashes, have been reported more frequently by female patients.

 

You can read the full article here.

Friday, 3 February, 2023

LGBT History Month - Andrew On The Fight For Fertility Equality For People Living With HIV

 

Andrew is in his 30s and has been living with HIV for 13 years. He wants to have a child with his husband by donating his sperm to a surrogate, but under current law is unable to do so. As part of LGBT History Month, Andrew has written a blog for National Aids Trust in which he discusses why the law needs to change to reflect the advances in medicine, so that those living with HIV can start a family. 

 

You can read the full article here.

 

February 1st 2023

Wednesday, 1 February, 2023

 

SEX, CHEMS, HIV AND CONSENT: A NEW REPORT FROM GEORGE HOUSE TRUST AND SURVIVORS MANCHESTER

 

Sex, Chems, HIV and Consent is a groundbreaking report from George House Trust and Survivors Manchester, written by Dr Michael Atkins, AKA Cheddar Gorgeous.

 

George House Trust and Survivors Manchester are two organisations that see the impact of stigma every single day, whether that's related to HIV or sexual violence and abuse. We're helping people talk, break the silence and think differently about their lives so that they can move on, grow and help others.

 

READ THE REPORT

 

This report is very much a conversation starter and a precursor to more extensive piece of research.

 

Thank you to the people who shared stories, provided insight and helped shape the report's recommendations which we're committed to taking forward. 

 

If you need any support around chems, sex, HIV and/or consent, you can contact George House Trust using the details below or Survivors Manchester here

 

27th January 2023

Friday, 27 January, 2023

Equal access to HIV medication across England

 

Following a recent procurement exercise by NHS England, which included consultations with people living with HIV, HIV support charities and drug companies, people living with HIV will now have equal access to HIV medication no matter where they live in the country – meaning that everyone will now be able to access the same range of medications and latest treatments, including the first long lasting injectable treatment which has now started to become available at HIV clinics.

 

In some regions, this means that some people will now have gained access to additional treatments which were not previously available to them.

 

As a result of this exercise, HIV clinicians will now undertake a review of patients’ medications.

 

Some clinicians have already started these reviews with their patients. These discussions are in line with national guidelines from BHIVA (British HIV Association) and BASHH (British Association for HIV and Sexual Health).

 

It is really important to note that you will be able to stay on your existing medication following any review done by your HIV clinician.

 

However, you may be given the opportunity to switch to a different medication – which in many cases will mean a generic version of your current branded one.

 

Generic versions of HIV medication contain the same active ingredients as branded versions and so are clinically the same. However, they are much cheaper than branded drugs.

 

It is also important to note that some HIV drugs will no longer be offered routinely by clinicians in the future.

 

The most important thing to remember is that nobody will have to change medication and no change in the medication prescribed to you should happen without an agreement between you and your HIV consultant.

 

If you want to talk about any concerns you might have about these changes please call us and we will be happy to advise you.

 

Colin Armstead, 10th October 2022

Monday, 10 October, 2022

Today, George House Trust launched a new report - Towards Positive Practice

 

The report, commissioned and funded by Manchester City Council’s Public Health Team, carried out a research and engagement exercise focused on the experiences of people living with HIV when accessing primary healthcare, specifically GPs.

 

It details the research findings and makes some key recommendations for practitioners and people living with HIV.

 

You can download and read it here

 

27th September 2022

Tuesday, 27 September, 2022

Pages

Living with HIV? Want to talk to us?
Call 0161 274 4499 or email: talk@ght.org.uk